Patients and Public Involvement in Research Practical Experiences From Different Settings

This e-book was strategically designed and organized to address the educational needs of Patient and Public Involvement (PPI) in Research, particularly for researchers in countries like Brazil, where PPI still needs to be widely incorporated into research projects and activities. It builds upon our first e-book, Patient and Public Involvement in Research, which introduced the foundational concepts of involving patients and the public in research. In this new e-book, we present practical and successful experiences of "how to do PPI," contributed by collaborators from various parts of the world. You will find examples of patient involvement across different health conditions and public engagement from various age groups in research led by countries such as England, Canada, Ireland, and the Netherlands. Additionally, initiatives from low- and middle-income countries, including Brazil, Chile, Uganda, and Indonesia, are shared. The growing interest in PPI training highlights the increasing recognition of the value of collaboration between researchers and the community. The need for PPI implementation is urgent—not only to meet this demand but also to transform the research landscape. Effective integration of PPI potentially will redefine how studies are conducted, ensuring that outcomes are more relevant, impactful, and aligned with the real needs and experiences of patients and the public involved.The chapters in this e-book were written by members of the public, researchers, clinicians, and students at undergraduate, master’s, and doctoral levels, who share their experiences with PPI. We hope this publication inspires readers to delve deeper, initiate, and/or refine the application of PPI in all research projects. Since most collaborators are native English speakers, this e-book will be published first in English and subsequently translated into Portuguese and Spanish to disseminate this content further in Brazil and Spanish-speaking countries.